Ehlers-Danlos Syndromes (EDS) Support Services

Provided by The Ehlers-Danlos Society

Provides support services to individuals living with EDS and hypermobility spectrum disorder.
The Ehlers-Danlos Society offers the following services:
  • Helpline: Individuals can contact the helpline via email or phone. The helpline can provide answers to general questions regarding the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). If you are unable to call the helpline, please use this form to have someone call you back.
  • Virtual Support Groups: Weekly, monthly, and quarterly virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support. Meetings are facilitated by staff from The Ehlers-Danlos Society. Attendees who wish to participate in the discussion must join the meeting through the Zoom platform. You can use Zoom with a webcam or just audio, whichever you prefer. Calls are intended for support and networking; medical advice will not be given on the calls. Registration required, register here.
  • Find a Health Professional: A list of health professionals that provide care specifically for individuals with EDS and HSD. The list can be accessed online, here.
  • Webinars

248-716-8336 (Helpline)

Website: https://www.ehlers-danlos.com/

Service is available in English.

Cost: No cost

Availability

Service area: Province-wide + show cities

Service area cities: 100 Mile House, Abbotsford, Agassiz, Aldergrove, Alert Bay, Alexis Creek, Anahim Lake, Anmore, Armstrong, Ashcroft, Atlin, Bamfield, Banff, Barriere, Bella Bella, Bella Coola, Black Creek, Blue River, Boston Bar, Bowen Island, Brentwood Bay, Burnaby, Burns Lake, Cache Creek, Calgary, Campbell River, Canmore, Castlegar, Cathedral Grove, Cawston, Chase, Chemainus, Chetwynd, Chilliwack, Christina Lake, Clearwater, Clinton, Cobble Hill, Comox, Coombs, Coquitlam, Cortes Island, Courtenay, Cranbrook, Crawford Bay, Creston, Cumberland, Daajing Giids, Dawson Creek, Dease Lake, Deep Bay, Delta, Denman Island, Duncan, Edgewood, Elkford, Enderby, Fanny Bay, Fernie, Fort Langley, Fort Nelson, Fort St. James, Fort St. John, Fraser Lake, Fruitvale, Gabriola Island, Galiano Island, Gibsons, Golden, Gold River, Grand Forks, Greenwood, Hanceville, Hazelton, Hope, Hornby Island, Horne Lake, Houston, Hudson's Hope, Invermere, Kamloops, Kaslo, Kelowna, Keremeos, Kimberley, Kitimat, Kyuquot, Ladner, Ladysmith, Lake Country, Lake Cowichan, Langford, Langley, Lantzville, Lethbridge, Lillooet, Lions Bay, Logan Lake, Long Beach, Lumby, Lytton, Mackenzie, Maple Ridge, Masset, Mayne Island, McBride, Merritt, Merville, Midway, Mill Bay, Mission, Nakusp, Nanaimo, Nanoose Bay, Nelson, New Aiyansh, New Denver, New Westminster, Nitinaht, North Delta, North Saanich, North Vancouver, Okanagan Falls, Oliver, Osoyoos, Oyama, Parksville, Peachland, Pemberton, Pender Harbour, Pender Island, Penelakut Island, Penticton, Pitt Meadows, Port Alberni, Port Alice, Port Coquitlam, Port Hardy, Port McNeill, Port Moody, Powell River, Prince George, Prince Rupert, Princeton, Quadra Island, Qualicum Beach, Quathiaski Cove, Quesnel, Revelstoke, Richmond, Riske Creek, Rock Creek, Rossland, Saanich, Saanichton, Salmo, Salmon Arm, Salt Spring Island, Sardis, Saturna Island, Sayward, Scotch Creek, Sechelt, Shawnigan Lake, Sicamous, Sidney, Skidegate, Slocan, Smithers, Sointula, Sooke, Sorrento, South Surrey, Sparwood, Spences Bridge, Squamish, Stewart, Summerland, Sun Peaks, Surrey, Tahsis, Tatla Lake, Telkwa, Terrace, Tofino, Trail, Tsawwassen, Tumbler Ridge, Ucluelet, Valemount, Vancouver, Vanderhoof, Vernon, Victoria, West Kelowna, West Vancouver, Whistler, White Rock, Williams Lake, Winlaw, Witset, and Yale

Service Types Provided
Condition Specific Support
Pain Management
    Ways to Access
    • Provided by phone
    • Provided online: email / video / on-line

    The listing of this service in Pathways is not a recommendation or endorsement by Pathways.

    Pathways does not provide medical advice. If you have an emergency please call 9-1-1. If you require assistance navigating services please call 8-1-1.

    For general inquiries or for assistance, please email us:

    community-services@pathwaysbc.ca

    If you are requesting clinical access to medical Pathways, please provide the following information via the email above:

    1. First Name
    2. Last Name
    3. Email
    4. In which city/town do you work?
    5. What is your role? E.g. Family Physician, Office Staff, Medical Resident
    6. Employer Name (for office staff)
    7. Office Phone

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